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Lola & Claire | by rarediseaseday
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Lola & Claire

Both of our daughters were born with microcephaly (MSG - microcephaly with simplified gyral patterns), dwarfism, spastic quad cerebral palsy, Cortical Visual Impairment, epilepsy, and more. They are very tiny for their ages -- Claire is 13 and 36" tall & 25 lb., and Lola is 8 and 24" tall & 11 lb. They are currently undiagnosed genetically, as doctors have been searching for the gene(s) responsible for their disability for 13+ years with no leads. For more info, visit my blog at

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Uploaded on February 9, 2015