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Sisters Fighting Mast Cell Activation Syndrome | by rarediseaseday
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Sisters Fighting Mast Cell Activation Syndrome

Valerie: Symptoms from birth. Major symptoms early 20s. Diagnosed with Mast Cell Activation Syndrome, EDS, & CRPS. Is in wheelchair. -Keisha was active 16 yr. old when hit with breathing issues landing her in ICU. Symptoms continue to worsen. Has symptoms of Mast Cell Activation Syndrome & Dystonia, but not diagnosed. -Allison: Symptoms since birth. Major issues since age 13. Many years later, diagnosed with Mast Cell Activation Syndrome. Has NJ feeding tube, PICC line with 24/7 IV Benadryl pump, in wheelchair, & sometimes wears HKAFOs. Has EDS, Dystonia, Status Dystonicus, & Dysautonomia.

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Taken on March 1, 2014