DES Diethylstilbestrol, Journal of a DES Daughter was created to raise awareness and share information about diethylstilbestrol and its side effects.

 

DES, short for diethylstilbestrol, is known as the silent Thalidomide; The synthetic oestrogen was developed in England in 1938. It wasn't patented and went on to be produced by more than 200 companies. It was prescribed to pregnant women mainly to prevent miscarriage. This was despite the fact that research published in the American Journal of Obstetrics and Gynecology in 1953 revealed that women receiving DES suffered a higher rate of miscarriage.

 

DES was prescribed to pregnant women from 1938 until 1971 (and until the late 1970's in Europe), when it was discovered that one in 1,000 daughters of women who had taken the drug developed a rare form of vaginal and cervical cancer, know as clear cell adenocarcinoma (CCAC). All DES daughters carry a lifelong risk of CCAC and are 40 more times likely to develop it than unexposed women. Most cases have occurred in women in their late teens and early twenties.

 

DES Diethylstilbestrol, Journal of a DES Daughter is a tool to share my experience and knowledge of diethylstilbestrol with other women, other DES daughters around the world who are suffering from the devastating consequences of DES.

 

My Journal of a DES Daughter:

1. Provides general information about DES exposure and DES side effects / consequences

2. Encourages women who think they may have been affected by DES exposure to seek advice and support from DES Action groups

3. Raises awareness amongst the general public about Distilbène® and the many other brand names under which the drug diethylstilbestrol was sold

4. Helps share DES updates, news and advocacy outcomes from all over the world

5. Compliments the work of DES Action groups by sharing my personal DES journey, my DES pregnancy, and my feelings, emotions and views on this worldwide drug disaster.

6. And if nothing else, logs my DES medical history for my daughters (DES 3rd generation) who hopefully will never have to use this information.

 

Diethylstilbestrol, Journal of a DES Daughter doesn’t claim to provide accurate medical, scientific or professional information. As its title suggests, this is just my personal journal and the result of my findings about diethylstilbestrol. Should you need medical or professional advice and support please contact your local DES Action group.

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