rarediseaseday's photostream  

Juan Alejandro fue diagnosticado con SPW, esta enfermedad rara con la que nace 1 de cada 10000 niños...

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Uploaded on Feb 9, 2012

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This is my Precious Little girl Kennadi Salina. Kennadi was dx with Lissencephaly at 5...

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Uploaded on Feb 8, 2012

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First day in a year that we were able to be out during the day.

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Uploaded on Feb 8, 2012

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My name is Jolie, and I have Neuromyotonia/Isaac's Syndrome. I have to use a cane to get around for...

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Uploaded on Feb 7, 2012

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Aplastic Anemia And Omid's Mission Foundation is honored to share the "Omid's...

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Uploaded on Feb 7, 2012

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I have Idiopathic Intracranial Hypertension. I was diagnosed with this debilitating condition over...

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Uploaded on Feb 6, 2012

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I am living with a rare condition called chiari malformation and syringomyelia with intracranial...

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Uploaded on Feb 6, 2012

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I am 48 years old and was born with Gaucher's Disease. Fortunate to be under wonderful care of...

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Uploaded on Feb 5, 2012

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I am super hero, so brave, so strong... I fight against a possible diagnosis of mitochondrial...

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Uploaded on Feb 5, 2012

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Someone wise once wrote: “The most beautiful people we have known are those who have known defeat,...

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Uploaded on Feb 4, 2012

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Primary PV. DX 2000 (age 28). Enlarged Spleen (x10 years)Total Hysterectomy, Appendectomy,...

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Uploaded on Feb 4, 2012

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I have Ehlers Danlos Syndrome, an invisible and rare condition. I am trying to raise awareness about...

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Uploaded on Feb 4, 2012

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I was diagnosed with Dermatomyositis in 1994. I was a athlete..ran 5 miles every day...waterskied,...

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Uploaded on Feb 3, 2012

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CADASIL - Rare Disease

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Uploaded on Feb 2, 2012

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Stage AMA FUORI DAL BUIO | CENTRO UNIVERSITARIO INTERDIPARTIMENTALE PER LE MALATTIE RARE DEL POLMONE...

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Uploaded on Feb 2, 2012

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Hi, my name is Tom, I am 36, and I have Friedreich's Ataxia or FA. A rare,...

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Uploaded on Feb 2, 2012

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This is my 5 year old son who suffers from the rare disease, Eosinophilic Esophagitis...

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Uploaded on Jan 31, 2012

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Diagnosed with Intracranial Hypertension in September, I'm learning every day how to deal with this disease.

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Uploaded on Jan 30, 2012

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