Lexxus shyann Crooks

Lexxus shyann Crooks

Our daughter is 2 and has recently been diagnosed with PPB. This has been very hard on us and her...

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Uploaded on May 6, 2013

5 views

 
Hannah

Hannah

Hannah McClellan is a 13 year old girl diagnosed with CDG1a (Congenital Disorders...

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Uploaded on Apr 14, 2013

57 views / 1 comment

 
public campaign boot visitors

public campaign boot visitors

public campaign Seef Mall Manama Bahrain RDDay boot visitors

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Uploaded on Apr 4, 2013

12 views

 
public campaign hands draw contest

public campaign hands draw contest

public campaign Seef Mall Manama Bahrain; hands draw contest

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Uploaded on Apr 4, 2013

12 views

 
rare disease day hands draw contest

rare disease day hands draw contest

public campaign Seef Mall Manama Bahrain:hands draw contest:children draw their beautiful hands in...

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Uploaded on Apr 4, 2013

10 views

 
Rare Disease Day Symposium 2013 Bahrain

Rare Disease Day Symposium 2013 Bahrain

196 people attended the Rare Disease Day Symposium 2013 Bahrain held at Al Jawhara Institute for...

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Uploaded on Apr 4, 2013

21 views

 
LtPSA rare disorders without borders

LtPSA rare disorders without borders

Lithuanian Pharmaceutical Students' Associations' members in Kaunas city hall raise hands for rare disease day! :)

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Uploaded on Mar 30, 2013

17 views

 
panza solidaritatii

panza solidaritatii

Panza solidaritatii realizata pe 27.02.2013

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Uploaded on Mar 26, 2013

25 views

 
Marc en el caixaforum de Barcelona

Marc en el caixaforum de Barcelona

Me llamo Marc domenech pedrola y mi madre Mªjose pedrola pascual, somos de Barcelona, tengo...

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Uploaded on Mar 25, 2013

51 views

 
RDD in Lithuania, Children's Hospital

RDD in Lithuania, Children's Hospital

RDD in Children's Hospital, Vilnius

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Uploaded on Mar 24, 2013

26 views

 
RDD2013 at IBMC, Porto

RDD2013 at IBMC, Porto

Aliança de Associações das Doenças Raras organized again, together with ORPHANET-Portugal, the RDD...

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Uploaded on Mar 21, 2013

24 views

 
Philippine Society for Orphan Disorders, Inc.

Philippine Society for Orphan Disorders, Inc.

Philippine Society for Orphan Disorders, Inc. patients, families, partners & friends join the...

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Uploaded on Mar 21, 2013

12 views

 
Celebrating Rare Disease Day 2013 in Rochester Hills, MI, USA

Celebrating Rare Disease Day 2013 in Rochester Hills, MI, USA

Celebrating Rare Disease Day at Rochester Rheumatology Research Center in Rochester Hills, MI, USA.

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Uploaded on Mar 18, 2013

117 views

 
Rare Disease Day in Iran

Rare Disease Day in Iran

Rare Disease Day 2013 in Iran was held by Rare Diseases Foundation of Iran at IRIB international...

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Uploaded on Mar 18, 2013

56 views

 
Together we are strong.

Together we are strong.

Pfizer colleagues in Collegeville, PA posted messages of support for patients affected by rare diseases.

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Uploaded on Mar 15, 2013

50 views

 
Raising hands for Rare Disease Day!

Raising hands for Rare Disease Day!

Pfizer colleagues in Collegeville, PA joined hands to recognize Rare Disease Day and bring needed attention to rare diseases.

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Uploaded on Mar 15, 2013

39 views

 
OrphanReach supporting Niemann-Pick type C

OrphanReach supporting Niemann-Pick type C

Researchers at QED's 'OrphanReach' division supporting 'Rare Disease Day' and local children with Niemann-Pick type C.

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Uploaded on Mar 15, 2013

173 views

 
Patients and Families commemorate 6th World Rare Disease Day

Patients and Families commemorate 6th World Rare Disease Day

Over 100 patients and families of the Philippine Society for Orphan Disoders, Inc. with partner...

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Uploaded on Mar 12, 2013

55 views

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