rarediseaseday's photostream  

This is my 5 year old son who suffers from the rare disease, Eosinophilic Esophagitis...

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Uploaded on Jan 31, 2012

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Diagnosed with Intracranial Hypertension in September, I'm learning every day how to deal with this disease.

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Uploaded on Jan 30, 2012

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Hi! I’m Alec (15) and Colin (11). We are brothers who have a rare disease Friedreich’s ataxia (FA)....

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Uploaded on Jan 28, 2012

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SOARING VOICES, sponsored by www.atypicalhus.org, invites you to be inspired, creative,...

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Uploaded on Jan 27, 2012

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SOARING VOICES, sponsored by www.atypicalhus.org, invites you to be inspired, creative,...

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Uploaded on Jan 27, 2012

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At 30 weeks pregnant it was discovered that I had preeclampsia. A pretty severe case. I was sent to...

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Uploaded on Jan 26, 2012

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Sam is excited to have his sixth birthday! Sam has fibrous dysplasia and chiari 1 malformation. He...

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Uploaded on Jan 26, 2012

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ELLA es la pewrsona que mas ha estado comprometida al cuidado de Ximena quien vive feliz y gracias...

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Uploaded on Jan 26, 2012

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I have been diagnosed with Friedreich's Ataxia. A rare, debilitating, life-shortening, degenerative...

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Uploaded on Jan 25, 2012

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My name is Erin. I am 31, live in Boston, and have a progressive neuromuscular disease called...

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Uploaded on Jan 25, 2012

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I took my own picture. I have been suffering with IH since 1985 but wasn't diagnosed until aroud...

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Uploaded on Jan 24, 2012

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Patient with Trimethylaminuria (TMAU).

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Uploaded on Jan 23, 2012

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I have Friedreich's ataxia. There is no denying that it affects my life dramatically, in ways I do...

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Uploaded on Jan 22, 2012

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Olivia Grace is a 5 yr old princess battling Battens Disease. Praying that someone will do the...

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Uploaded on Jan 22, 2012

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My name is Beth Bax. I was diagnosed at 30 with a degenerative genetic disease called Friedreich's...

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Uploaded on Jan 21, 2012

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Friedreich’s Ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder....

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Uploaded on Jan 20, 2012

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Warburg Micro Syndrome (WMS) affects ~1 in 230,000,000 people in the World. Here are the wonderful...

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Uploaded on Jan 19, 2012

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We did it!! Because of our's parents love and determination. The doctors said we were going to die... We are alive!!

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Uploaded on Jan 17, 2012

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