SOARING VOICES

SOARING VOICES

SOARING VOICES, sponsored by www.atypicalhus.org, invites you to be inspired, creative,...

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Uploaded on Jan 27, 2012

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SOARING VOICES Campaign

SOARING VOICES Campaign

SOARING VOICES, sponsored by www.atypicalhus.org, invites you to be inspired, creative,...

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Uploaded on Jan 27, 2012

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We made it to One!!

We made it to One!!

At 30 weeks pregnant it was discovered that I had preeclampsia. A pretty severe case. I was sent to...

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Uploaded on Jan 26, 2012

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Sam with two rare diseases

Sam with two rare diseases

Sam is excited to have his sixth birthday! Sam has fibrous dysplasia and chiari 1 malformation. He...

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Uploaded on Jan 26, 2012

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MPS

MPS

ELLA es la pewrsona que mas ha estado comprometida al cuidado de Ximena quien vive feliz y gracias...

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Uploaded on Jan 26, 2012

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There is hope!

There is hope!

I have been diagnosed with Friedreich's Ataxia. A rare, debilitating, life-shortening, degenerative...

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Uploaded on Jan 25, 2012

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skydive

skydive

My name is Erin. I am 31, live in Boston, and have a progressive neuromuscular disease called...

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Uploaded on Jan 25, 2012

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I try to keep going

I try to keep going

I took my own picture. I have been suffering with IH since 1985 but wasn't diagnosed until aroud...

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Uploaded on Jan 24, 2012

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Cheryl Fields

Cheryl Fields

Patient with Trimethylaminuria (TMAU).

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Uploaded on Jan 23, 2012

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John Cernosek

John Cernosek

I have Friedreich's ataxia. There is no denying that it affects my life dramatically, in ways I do...

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Uploaded on Jan 22, 2012

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Olivia Grace

Olivia Grace

Olivia Grace is a 5 yr old princess battling Battens Disease. Praying that someone will do the...

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Uploaded on Jan 22, 2012

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Boundless Joy!

Boundless Joy!

My name is Beth Bax. I was diagnosed at 30 with a degenerative genetic disease called Friedreich's...

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Uploaded on Jan 21, 2012

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Hope for a cure for FA!

Hope for a cure for FA!

Friedreich’s Ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder....

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Uploaded on Jan 20, 2012

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World's 1st Warburg Micro Syndrome Symposium

World's 1st Warburg Micro Syndrome Symposium

Warburg Micro Syndrome (WMS) affects ~1 in 230,000,000 people in the World. Here are the wonderful...

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Uploaded on Jan 19, 2012

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metamorphosis

metamorphosis

We did it!! Because of our's parents love and determination. The doctors said we were going to die... We are alive!!

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Uploaded on Jan 17, 2012

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Faces of GIST Cancer

Faces of GIST Cancer

GIST (Gastrointestinal Stromal Tumor) Cancer is one of the rarest, deadliest sarcomas which strikes...

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Uploaded on Jan 17, 2012

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Keep Believing

Keep Believing

The youngest of four children,Joaquin has endured more than his fair share of pain in his short 34...

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Uploaded on Jan 16, 2012

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Life after Stevens Johnson

Life after Stevens Johnson

I contracted Stevens Johnson Syndrome following a Liver Transplant and was desperately ill for...

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Uploaded on Jan 16, 2012

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