|
rarediseaseday's photostream
|
|
SOARING VOICES
SOARING VOICES, sponsored by www.atypicalhus.org, invites you to be inspired, creative,...
All rights reserved
Uploaded on Jan 27, 2012
SOARING VOICES Campaign
SOARING VOICES, sponsored by www.atypicalhus.org, invites you to be inspired, creative,...
All rights reserved
Uploaded on Jan 27, 2012
We made it to One!!
At 30 weeks pregnant it was discovered that I had preeclampsia. A pretty severe case. I was sent to...
All rights reserved
Uploaded on Jan 26, 2012
Sam with two rare diseases
Sam is excited to have his sixth birthday! Sam has fibrous dysplasia and chiari 1 malformation. He...
All rights reserved
Uploaded on Jan 26, 2012
MPS
ELLA es la pewrsona que mas ha estado comprometida al cuidado de Ximena quien vive feliz y gracias...
All rights reserved
Uploaded on Jan 26, 2012
There is hope!
I have been diagnosed with Friedreich's Ataxia. A rare, debilitating, life-shortening, degenerative...
All rights reserved
Uploaded on Jan 25, 2012
skydive
My name is Erin. I am 31, live in Boston, and have a progressive neuromuscular disease called...
All rights reserved
Uploaded on Jan 25, 2012
I try to keep going
I took my own picture. I have been suffering with IH since 1985 but wasn't diagnosed until aroud...
All rights reserved
Uploaded on Jan 24, 2012
Cheryl Fields
John Cernosek
I have Friedreich's ataxia. There is no denying that it affects my life dramatically, in ways I do...
All rights reserved
Uploaded on Jan 22, 2012
Olivia Grace
Olivia Grace is a 5 yr old princess battling Battens Disease. Praying that someone will do the...
All rights reserved
Uploaded on Jan 22, 2012
Boundless Joy!
My name is Beth Bax. I was diagnosed at 30 with a degenerative genetic disease called Friedreich's...
All rights reserved
Uploaded on Jan 21, 2012
Hope for a cure for FA!
Friedreich’s Ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder....
All rights reserved
Uploaded on Jan 20, 2012
World's 1st Warburg Micro Syndrome Symposium
Warburg Micro Syndrome (WMS) affects ~1 in 230,000,000 people in the World. Here are the wonderful...
All rights reserved
Uploaded on Jan 19, 2012
metamorphosis
We did it!! Because of our's parents love and determination. The doctors said we were going to die... We are alive!!
All rights reserved
Uploaded on Jan 17, 2012
Faces of GIST Cancer
GIST (Gastrointestinal Stromal Tumor) Cancer is one of the rarest, deadliest sarcomas which strikes...
All rights reserved
Uploaded on Jan 17, 2012
Keep Believing
The youngest of four children,Joaquin has endured more than his fair share of pain in his short 34...
All rights reserved
Uploaded on Jan 16, 2012
Life after Stevens Johnson
I contracted Stevens Johnson Syndrome following a Liver Transplant and was desperately ill for...
All rights reserved
Uploaded on Jan 16, 2012
Rare Disease Day 2011
Runners-up 2010 Photo Contest
Rare Disease Day '09 -...
Rare Disease Day '09 - Science
