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Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure by:
- Funding and advancing a comprehensive research program;
- Supporting SMA families through networking, information and services;
- Improving care for all SMA patients;
- Educating health professionals and the public about SMA;
- Enlisting government support for SMA;
- Embracing all touched by SMA in a caring community.
Our vision is a world where Spinal Muscular Atrophy is treatable and curable.
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- Name:
- Families of Spinal Muscular Atrophy
- Joined:
- February 2010
- Currently:
- Elk Grove Village, Illinois
- Website:
- http://www.curesma.org/